In some cases, a child with PANDAS may have psychiatric symptoms that can escalate to hallucinations, aggressive behavior, and suicidal ideation. Parents, along with medical and mental health professionals, need to make a safety plan for emergency situations. CLICK ON THE LINK BELOW TO DOWNLOAD A SAFETY PLAN.

Parents are their children's doctor, lawyer, teacher and, above all, advocate. They must be persistent in finding the right practitioners, the highest efficacious treatment, and the most appropriate educational intervention for their children. SEE RESEARCH STUDY ON PARENTS' EXPERIENCES.

Family members can benefit from many websites which offer education on the latest research and support groups, both locally and online. One such website, is the newly initiated ASPIRE.CARE. HEAR MORE ABOUT IT ON THE "MORE INFO" PAGE OR BY FOLLOWING THIS LINK.

PANDAS, like any diagnosed illness, costs a family physically and emotionally, but also costs them financially. Many treatments are not covered by insurance and are very expensive. SEE PARENT RESOURCES ON "MORE INFO" PAGE OR BY FOLLOWING THIS LINK.