PANDAS
Pediatric Autoimmune Neuropsychiatric Disorder Associated with Streptococcus
Recommended Website
Recommended Reading
Comprehensive resource for parents and professionals.
A great place to start for parents with a child newly diagnosed.
Handbook for educators with great ideas for accommodations and resources for classroom teachers and administrators.
Books for parents and children to read together
Resources for Parents
Federal Regulations/504
Section 504 of the IDEA prohibits discrimination based on disability. However, this assumption that a child's needs are continuous at least for the school year does not always apply to children diagnosed with PANDAS. These children usually have episodic needs which may wax and wane dependent on many variables, including flare ups. These changing needs must also be met through federal regulations. Parents must know their rights and school personnel and social workers need to assist parents in advocating for children in the classroom. Section 504 states that "Therefore as long as there is data that serves as evidence supporting the need for accommodations, children MUST be allowed appropriate accommodation..."
504 Parent Guide
504 Fact Sheet
Aspire.care
Parent Symptoms Rating Scale
Download
Safety Plan